Where My Zebras At?

Chronic Pain as a Kid

My Version of Normal is Very Unique My medical journey began as I first entered the world, therefore making pain a normal component of my...

Chronic Pain, It’s Not Just Physical

Those who have not experienced chronic pain themselves likely do not understand how impactful living in constant pain truly is. Living...

The Spoon Theory

The Spoon Theory, originated by Christina Miserandino (2003), is often used within the chronic illness community to explain what it’s...

Lessons COVID Can Teach About Chronic Illness

Following the onset of COVID-19, it is unsurprising that for many individuals the pandemic has created additional stress, anxieties, and...

19 Things 2019 & Getting Diagnosed Taught Me

1. A diagnosis does not help people understandwhen even medical professionals have never heard of it prior. The biggest hope that I had...

How to Survive College With a Chronic Illness

College can cause a great deal of stress for students, and when those students also face the additional stress of being chronically ill,...

My Zebra Celebration

No one wants to have an illness, but when you’ve been living with one without answers for 20 years, the long-awaited diagnosis deserves a...

What is Ehlers-Danlos Syndrome (EDS)?

"At this point in time, I put EDS in the category of being in the top three or four most severe pain problems . A lot of people for...

Why the Zebra?

"When you hear hoofbeats, think horses, not zebras." Medical school students are frequently taught this phrase in an effort to prevent...

What is Postural Orthostatic Tachycardia Syndrome (POTS)?

Postural orthostatic tachycardia syndrome (POTS) is a condition that affects circulation/blood flow. For a healthy individual, their...

What is Mast Cell Activation Syndrome (MCAS)?

"It's hard to imagine a disease more complex than mast cell activation disease..." ...

What is Complex Regional Pain Syndrome (CRPS)?

With a rating of 46.5 (out of 50) on the McGill Pain Index, CRPS is the most painful disease in the world. Complex regional pain syndrome...

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