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Where My Zebras At?
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AN EHLERS-DANLOS SYNDROME BLOG


Chronic Pain as a Kid
My Version of Normal is Very Unique My medical journey began as I first entered the world, therefore making pain a normal component of my...
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Chronic Pain, It’s Not Just Physical
Those who have not experienced chronic pain themselves likely do not understand how impactful living in constant pain truly is. Living...
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The Spoon Theory
The Spoon Theory, originated by Christina Miserandino (2003), is often used within the chronic illness community to explain what it’s...
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Lessons COVID Can Teach About Chronic Illness
Following the onset of COVID-19, it is unsurprising that for many individuals the pandemic has created additional stress, anxieties, and...
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19 Things 2019 & Getting Diagnosed Taught Me
1. A diagnosis does not help people understandwhen even medical professionals have never heard of it prior. The biggest hope that I had...
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How to Survive College With a Chronic Illness
College can cause a great deal of stress for students, and when those students also face the additional stress of being chronically ill,...
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My Zebra Celebration
No one wants to have an illness, but when you’ve been living with one without answers for 20 years, the long-awaited diagnosis deserves a...
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What is Ehlers-Danlos Syndrome (EDS)?
"At this point in time, I put EDS in the category of being in the top three or four most severe pain problems . A lot of people for...
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Why the Zebra?
"When you hear hoofbeats, think horses, not zebras." Medical school students are frequently taught this phrase in an effort to prevent...
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What is Postural Orthostatic Tachycardia Syndrome (POTS)?
Postural orthostatic tachycardia syndrome (POTS) is a condition that affects circulation/blood flow. For a healthy individual, their...
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What is Mast Cell Activation Syndrome (MCAS)?
"It's hard to imagine a disease more complex than mast cell activation disease..." ...
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What is Complex Regional Pain Syndrome (CRPS)?
With a rating of 46.5 (out of 50) on the McGill Pain Index, CRPS is the most painful disease in the world. Complex regional pain syndrome...
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